An exciting three days at The Equality Lounge, collaborating on equality issues and for us in particular raising awareness on #equality issues in health services.

A great big thank you to all the team @foundation_orphanhealthcare and to @llauramacdonald at Care Circle Technologies for making our trip @worldeconomicforum a possibility. In the field of rare diseases collective effort is a must as we rally together to raise awareness and create impact on this cause whilst always keeping in mind our patients’ interests as the highest priority. It was a journey full of challenges from walking in metres deep of snow and darkness to juggling schedules with the office back home on the eve of our Rare Diseases Campaign 2025 but we made it. Particularly thanks to Dr. Frank Grossman who organized all the details and was kind enough to let us hold onto him in the icy snow 😅❄️🌨️ and to Taska Cuba … who let us monopolize her papa and who let us share her space🥰 #raisingawareness #rarediseases #rarediseaseawareness